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WHO ARE WE?The Albinism Society of South Africa(ASSA)

The Albinism Society of South Africa(ASSA)Spreading Awareness About Albinism

The Albinism Society of South Africa was established in 1992 and is the brainchild of the Executive Director, Mrs. Nomasonto Mazibuko. The whole idea of establishing the organization was to enhance the self- esteem of people with albinism, enable and support parents to care properly for children with albinism and create socially acceptable conditions for people with albinism. This is achieved by running a number of projects and programmes as well as running workshops and seminars. The other aim of the society is collecting and disseminating information on albinism to the community.

To enhance the Self-esteem of People with Albinism.
• To educate and provide user- friendly information on albinism to the community.
• Dispelling myths and Misconceptions while alleviating trauma around albinism.
Aims and Objectives
• To enhance the self-esteem of people with albinism.
• To offer information on albinism to its members and the community through programmes that
will amplify the fact that "Albinism is a manageable condition."
• To encourage its members to cope with the condition through the use of optical aids, sun-screens,
and the correct type of clothing.
• To provide educational programmes that will assist members to acquire skills towards adequate
health conditions as well as social and economic stability.
• To alleviate the trauma experienced by people with albinism their families and associates by assisting them to accept the situation and providing support by educating them and the community through workshops, seminars, and conferences.
• To establish local, provincial, and national structures in the Republic of South Africa.

ASSAOperations and Governance

The Albinism Society functions with the help and support of the National Office located in Gauteng in the center of Johannesburg as well as support groups and non-permanent coordinators in nine provinces who service the organization purely on a voluntary basis.

There is a board of seven members governing the operations of the organization. The board meets once every quarter and in addition the executive committee made up of the Chairperson, the Treasurer, the Minutes Secretary and Projects Co-ordinator meets regularly for urgent matters.

Programme Implementation

  • The Society engages in lobbying and advocating for the needs, recognition, and social acceptability of people with albinism and their families. It also provides education and awareness by engaging the community through conducting workshops that seek to dispel myths and misconceptions on albinism. Some of the activities of the Society include:
  • In conjunction with the Department of Education facilitate conducive learning conditions for learners with albinism at schools.
  • In conjunction with the Department of Social Services, facilitate the dissemination of information about social issues.
  • Offer and facilitate counseling to individuals and parents of people with albinism.
  • Run awareness campaigns on various issues on albinism, a number of activities take place during the month of September every year which denotes Albinism Month.

Notable Activities of the Society

The Society is involved in the following activities:

  • Awareness Campaigns on Albinism
  • Fieldwork involving schools and churches disseminating information on albinism.
  • Establishment of support groups in the nine provinces of South Africa.
  • Systematic training for effective parenting
  • Training in Human Rights issues and gender issues
  • Counseling of people with albinism, their families and associates
  • National Schools Essay Competition on Albinism
  • Life-skills training for the youth
  • Fundraising and resource mobilization
  • Career advice for young people
  • Training in Financial Management
  • Forging links with other organizations sharing the same plight.
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The Albinism Society of South Africa was established in 1992 and is the brainchild of the Executive Director, Mrs. Nomasonto Mazibuko.

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