The Albinism Society of South Africa was established in 1992 and is the brainchild of the Executive Director, Mrs. Nomasonto Mazibuko. The whole idea of establishing the organization was to enhance the self- esteem of people with albinism, enable and support parents to care properly for children with albinism and create socially acceptable conditions for people with albinism. This is achieved by running a number of projects and programmes as well as running workshops and seminars. The other aim of the society is collecting and disseminating information on albinism to the community.
The Albinism Society functions with the help and support of the National Office located in Gauteng in the center of Johannesburg as well as support groups and non-permanent coordinators in nine provinces who service the organization purely on a voluntary basis.
There is a board of seven members governing the operations of the organization. The board meets once every quarter and in addition the executive committee made up of the Chairperson, the Treasurer, the Minutes Secretary and Projects Co-ordinator meets regularly for urgent matters.